This is Adara.
But this is a different kind of blog post.
This is not about newborn photography; it is about Adara, and what’s going to happen in her life this week.
Adara was born with a heart condition, and this Wednesday she will have open heart surgery.
That’s Mama on the top right there. She’s been working so hard to care for her baby, all the while with her older son at home. Do you know what it’s like to have one baby in the hospital and one at home? She’s been working so hard. Her name is Vicky. She’s amazing. Her husband’s name is Tim. He is, too.
Adara’s been in the hospital for two weeks now, trying to gain weight for surgery. Her sweet little heart is working so hard.
Please keep Adara in your thoughts and prayers this week. Maybe set an alarm on your phone? Share this post on pinterest, or facebook, with others who might know what it’s like to have a “heart baby”?
Maybe leave some love here for her family? Wednesday is going to be a hard day. Sitting outside a 6 hour surgery is a hard thing to do.
I’ll be at the hospital with them for part of the day on Wednesday. I’m shutting down work to be there, so things will be moving a little slower this week.
So, if you have a few minutes, please think of little Adara and her family- Mom and Dad are Vicky & Tim, and her big brother is Caleb.
Please feel free to text for updates. I will be happy to answer you as we have time. 4145810700 Robyn
Adara’s caringbridge site is here.
Yes, I do know what its like to worry about your baby(ies) potentially dying while you have another tot at home that you’re trying desparately not to neglect. I feel for her. 🙁 And will be thinking of them on Wednesday. Lots of positivity.
I don’t know you and I don’t know them, but I have a son and would be devastated if anything happened to him. I will definitely be praying for them and sweet Adara.
I will be praying. Our daughter, Mia, was born with an extremely rare congenital heart defect called Ebstein’s anomaly. She spent 11 1/2 months in the hospital and just got out in January. We were finally able to hold her for the first time and watch her first breath (on her own) at 2 months old. We too have waited outside several surgeries and it doesn’t get any easier. Prayers will be lifted up today!
I just want you to know that I am praying. I have a 26 year old son who was born with Transposition of the Great Arteries…. I know that God answers prayers! I understand the long and tiring journey you have started…. and yes, it is difficult with children at home who are older…. Mine were 9 & 7 (nearly 10 & 8), and also some other difficult things were going on in my life at that time. My heart is praying for Daddy who is so concerned for his tiny, beautiful daughter.. and his lovely wife, whom he adores…… And for Momma… There’s nothing more devoted than a Mother’s heart….. but it is exhausting…… The hope & strength come from the Lord & please remember your joy comes from Him as well….. Praying for all the things that I needed prayer for those 26 + years ago. From one mother’s heart to another….. Praying in the Love of Christ…. By the way….Adara Grace “is beautiful”!
I do know what it is like to have a baby in the hospital awaiting open heart surgery with two other children at home… devastating… being pulled in way too many directions… heartbroken, sad… but also hopeful, positive, and faithful… I don’t know what the baby’s condition is, but would like to know more… do they have a caringbridge site or something similar?? Also, if you could please pass on some info to her… We belong to a “heart family” support group called Lasting Imprint (lastingimprint.org) she could find valuable resources, support, and comfort, and probably others who share what her daughter has… I will also re-post this for more prayers… Thank you for posting, and what beautiful pictures of this precious child!
Thank you, Everyone, for your comments. I will contact the family and see if they would like to post the caring page. If so, I can back link it for you. It is a public page, I believe.
Vicky and Tim sent a message earlier- they are so grateful for the support and kind words. They are spending a special day/evening with their son, and gearing up for a big couple of days.
Thanks to all.
I too had a heart baby girl and an older son at home, though my heart baby didn’t go for surgery until she was 6 months old…I remember the anguish of that time better than I remember her birth, I am sad to say. But despite the fear and the worry, moments of grace came through. Messages from others that carried us on and moments of insight that were as clear as God speaking right to me. Through it all what held me aloft like a buoy in a heavy sea was this verse: For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.” Jeremiah 29:11
May the peace of Christ fill your mind and ease your worries. You don’t carry your burden alone, Vicky and Tim. God bless Adara Grace and may He watch over your little lamb and guide her surgeons’ hands as they use their gifts to heal her broken heart.
Ah – I hit send too soon…my heart baby now is a beautiful, energetic 9 year old who dances along to her own song in life. …plans to give you hope and a future.
Too many things that hit home here. First I am also a photographer http://www.wildchildphoto.com 2nd I also had a baby girl with a heart condition requiring OHS 3rd I have an older children at home including a son named Caleb. Will be pryaing for this baby girl. My heart baby is now 3.
I am fiercely praying for momma and daddy and brother and most of all little Adara! My oldest son underwent a 6 hour open hear surgery as well, he was 2 yrs old. He did amazing and is now a healthy 10 (almost 11) ye old who was just cleared by his cardiologist for 2 years!! May God be holding this precious little girl and give the surgeons clarity and hold their hands steady… My sons surgeons were from the Milwaukee children’s hospital… They cane all the way to Chicago for my son! Please keep us “heart baby” mommas updated.
May God bless Adara and family. You will all be in my thoughts and prayers.
Here is the caringbridge site:
My name is Katy. I am friends with Emily Kerous. I may have met you, Vikki, once. Anyway, just wanted to say how touched I was by your baby girl’s story. I will pray for all involved. But especially for the doctors, nurses, and medical staff that will be with your daughter tomorrow. May they interact with and touch your Adara’s heart in healing ways; and may she, tiny and vulnerable on their table, touch right back directly through her heart in the most miraculous of ways.
I pray for strength, faith, grace, healing, wisdom, and great blessings for you & your family the doctors, and especially your little baby. I pray God will keep you all in his hands and mold her little heart to be new again. I pray this in your holy & precious name. Amen
I am writing from Massachusetts and am a friend of Emily Kerous. I read her post on fb and want you to know I said a prayer for your sweet baby girl. God Bless all her Doctor’s and nurses while she is in their care. Babies are strong and I pray she is even stronger at the end of this surgery. Thinking of your family.
Hi everyone, updating quickly from an iPhone. All went perfectly today!!!
Thank you for all your prayers and love! Adara is a strong little lady!!!
more to come, including pictures from surgery day.